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E-Health & Innovation to Overcome Barriers in Neuromuscular Diseases. Report from the 1st eNMD Congress: Nice, France, March 22-23, 2019
By definition, neuromuscular diseases are rare and fluctuating in terms of symptoms; patients are often lately diagnosed, do not have enough information to understand their condition and be proactive in their management. Usually, insufficient resources or services are available, leading to patients’...
Autores principales: | Pini, Jonathan, Siciliano, Gabriele, Lahaut, Pauline, Braun, Serge, Segovia-Kueny, Sandrine, Kole, Anna, Hérnando, Ines, Selb, Julij, Schirinzi, Erika, Duong, Tina, Hogrel, Jean-Yves, Olmedo, José Javier Serrano, Vissing, John, Servais, Laurent, Vincent-Genod, Dominique, Vuillerot, Carole, Bannwarth, Sylvie, Eggenspieler, Damien, Vicart, Savine, Diaz-Manera, Jordi, Lochmüller, Hanns, Sacconi, Sabrina |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
IOS Press
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8385527/ https://www.ncbi.nlm.nih.gov/pubmed/33843694 http://dx.doi.org/10.3233/JND-210655 |
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