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Perceptions about Research Participation among Individuals at Risk and Individuals with Premanifest Huntington’s Disease: A Survey Conducted by the European Huntington Association

There has been great progress in Huntington’s disease (HD) research. Yet, effective treatments to halt disease before the onset of disabling symptoms are still unavailable. Scientific breakthroughs require an active and lasting commitment from families. However, they are traditionally less involved...

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Detalles Bibliográficos
Autores principales: Júlio, Filipa, Blanco, Ruth, Casanova, Josè Perez, D’Alessio, Barbara, De Schepper, Beatrice, De Sousa, Dina, De Sousa, Paul, Ferreira, Cristina, Gommans, Hans, Haselberg, Rob, Hermant, Emilie, Lis, Danuta, Maffi, Sabrina, Olsen, Svein Olaf, Papantoniou, Marios, Squitieri, Ferdinando, Tretyakova, Marina, Umakhanova, Zaynab, Václavík, Vladimír, Winkelmann, Michaela, Arnesen, Astri
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8400079/
https://www.ncbi.nlm.nih.gov/pubmed/34442459
http://dx.doi.org/10.3390/jpm11080815