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Perceptions about Research Participation among Individuals at Risk and Individuals with Premanifest Huntington’s Disease: A Survey Conducted by the European Huntington Association
There has been great progress in Huntington’s disease (HD) research. Yet, effective treatments to halt disease before the onset of disabling symptoms are still unavailable. Scientific breakthroughs require an active and lasting commitment from families. However, they are traditionally less involved...
Autores principales: | Júlio, Filipa, Blanco, Ruth, Casanova, Josè Perez, D’Alessio, Barbara, De Schepper, Beatrice, De Sousa, Dina, De Sousa, Paul, Ferreira, Cristina, Gommans, Hans, Haselberg, Rob, Hermant, Emilie, Lis, Danuta, Maffi, Sabrina, Olsen, Svein Olaf, Papantoniou, Marios, Squitieri, Ferdinando, Tretyakova, Marina, Umakhanova, Zaynab, Václavík, Vladimír, Winkelmann, Michaela, Arnesen, Astri |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8400079/ https://www.ncbi.nlm.nih.gov/pubmed/34442459 http://dx.doi.org/10.3390/jpm11080815 |
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