Cargando…

The Impact of a Preterm Baby Arrival in a Family: A Descriptive Cross-Sectional Pilot Study

Background: The rate of premature births is increasing every day, with an estimated 15 million premature babies born worldwide each year. When a child is born prematurely, he or she is transferred to a Neonatal Intensive Care Unit (NICU), requiring special care on an ongoing basis. The admission of...

Descripción completa

Detalles Bibliográficos
Autores principales: Jiménez-Palomares, María, Fernández-Rejano, María, Garrido-Ardila, Elisa María, Montanero-Fernández, Jesús, Oliva-Ruiz, Petronila, Rodríguez-Mansilla, Juan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8509143/
https://www.ncbi.nlm.nih.gov/pubmed/34640511
http://dx.doi.org/10.3390/jcm10194494
_version_ 1784582263790370816
author Jiménez-Palomares, María
Fernández-Rejano, María
Garrido-Ardila, Elisa María
Montanero-Fernández, Jesús
Oliva-Ruiz, Petronila
Rodríguez-Mansilla, Juan
author_facet Jiménez-Palomares, María
Fernández-Rejano, María
Garrido-Ardila, Elisa María
Montanero-Fernández, Jesús
Oliva-Ruiz, Petronila
Rodríguez-Mansilla, Juan
author_sort Jiménez-Palomares, María
collection PubMed
description Background: The rate of premature births is increasing every day, with an estimated 15 million premature babies born worldwide each year. When a child is born prematurely, he or she is transferred to a Neonatal Intensive Care Unit (NICU), requiring special care on an ongoing basis. The admission of the newborn to these units can negatively affect the family routine as it generates changes and requires adaptation to new roles. Objectives: The objective of the present study was to understand the effect of the arrival of a premature baby on the family, based on the parents’ perception. Methods: A cross-sectional descriptive observational study conducted by means of a self-administered online ad-hoc questionnaire which collected information related to the situation of the relatives of premature infants in the region of Extremadura (Spain). The questionnaire consisted of a total of 35 questions, divided into three sections: ‘family environment’, ‘stay in hospital’ and ‘return home’. Results: Among the 53 responses obtained from fathers and mothers, 44 were from mothers. 53.6% of the respondents felt a delay in the acquisition of their parental role and 86.8% were afraid for their baby. During hospital stay, most of the parents had to modify their routines (94.3%), 69.8% suffered from sleep disturbances, 84.9% changed their eating habits and 88.5% referred to loss of time for themselves. Once at home, the time it took to recover their family normality ranged from 4 to 11 months, while 84.9% of respondents neglected their personal appearance and more than half had to give up or reduce their working hours. Conclusion: The arrival of a premature baby has a strong impact on the parents’ family environment, altering their daily routines and occupations both in hospital and at home. If preterm care programmes take into account these possible occupational imbalances, it will not only meet the needs of the parents but also provide family-centred care.
format Online
Article
Text
id pubmed-8509143
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher MDPI
record_format MEDLINE/PubMed
spelling pubmed-85091432021-10-13 The Impact of a Preterm Baby Arrival in a Family: A Descriptive Cross-Sectional Pilot Study Jiménez-Palomares, María Fernández-Rejano, María Garrido-Ardila, Elisa María Montanero-Fernández, Jesús Oliva-Ruiz, Petronila Rodríguez-Mansilla, Juan J Clin Med Article Background: The rate of premature births is increasing every day, with an estimated 15 million premature babies born worldwide each year. When a child is born prematurely, he or she is transferred to a Neonatal Intensive Care Unit (NICU), requiring special care on an ongoing basis. The admission of the newborn to these units can negatively affect the family routine as it generates changes and requires adaptation to new roles. Objectives: The objective of the present study was to understand the effect of the arrival of a premature baby on the family, based on the parents’ perception. Methods: A cross-sectional descriptive observational study conducted by means of a self-administered online ad-hoc questionnaire which collected information related to the situation of the relatives of premature infants in the region of Extremadura (Spain). The questionnaire consisted of a total of 35 questions, divided into three sections: ‘family environment’, ‘stay in hospital’ and ‘return home’. Results: Among the 53 responses obtained from fathers and mothers, 44 were from mothers. 53.6% of the respondents felt a delay in the acquisition of their parental role and 86.8% were afraid for their baby. During hospital stay, most of the parents had to modify their routines (94.3%), 69.8% suffered from sleep disturbances, 84.9% changed their eating habits and 88.5% referred to loss of time for themselves. Once at home, the time it took to recover their family normality ranged from 4 to 11 months, while 84.9% of respondents neglected their personal appearance and more than half had to give up or reduce their working hours. Conclusion: The arrival of a premature baby has a strong impact on the parents’ family environment, altering their daily routines and occupations both in hospital and at home. If preterm care programmes take into account these possible occupational imbalances, it will not only meet the needs of the parents but also provide family-centred care. MDPI 2021-09-29 /pmc/articles/PMC8509143/ /pubmed/34640511 http://dx.doi.org/10.3390/jcm10194494 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Jiménez-Palomares, María
Fernández-Rejano, María
Garrido-Ardila, Elisa María
Montanero-Fernández, Jesús
Oliva-Ruiz, Petronila
Rodríguez-Mansilla, Juan
The Impact of a Preterm Baby Arrival in a Family: A Descriptive Cross-Sectional Pilot Study
title The Impact of a Preterm Baby Arrival in a Family: A Descriptive Cross-Sectional Pilot Study
title_full The Impact of a Preterm Baby Arrival in a Family: A Descriptive Cross-Sectional Pilot Study
title_fullStr The Impact of a Preterm Baby Arrival in a Family: A Descriptive Cross-Sectional Pilot Study
title_full_unstemmed The Impact of a Preterm Baby Arrival in a Family: A Descriptive Cross-Sectional Pilot Study
title_short The Impact of a Preterm Baby Arrival in a Family: A Descriptive Cross-Sectional Pilot Study
title_sort impact of a preterm baby arrival in a family: a descriptive cross-sectional pilot study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8509143/
https://www.ncbi.nlm.nih.gov/pubmed/34640511
http://dx.doi.org/10.3390/jcm10194494
work_keys_str_mv AT jimenezpalomaresmaria theimpactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy
AT fernandezrejanomaria theimpactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy
AT garridoardilaelisamaria theimpactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy
AT montanerofernandezjesus theimpactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy
AT olivaruizpetronila theimpactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy
AT rodriguezmansillajuan theimpactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy
AT jimenezpalomaresmaria impactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy
AT fernandezrejanomaria impactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy
AT garridoardilaelisamaria impactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy
AT montanerofernandezjesus impactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy
AT olivaruizpetronila impactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy
AT rodriguezmansillajuan impactofapretermbabyarrivalinafamilyadescriptivecrosssectionalpilotstudy