Innovation in Informatics to Improve Clinical Care and Drug Accessibility for Rare Diseases in China

Background: In China, there are severe unmet medical needs of people living with rare diseases. Relatedly, there is a dearth of data to inform rare diseases policy. This is historically partially due to the lack of informatics infrastructure, including standards and terminology, data sharing mechani...

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Detalles Bibliográficos
Autores principales: Liu, Peng, Gong, Mengchun, Li, Jie, Baynam, Gareth, Zhu, Weiguo, Zhu, Yicheng, Chen, Limeng, Gu, Weihong, Zhang, Shuyang
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Pharmacology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8553959/
https://www.ncbi.nlm.nih.gov/pubmed/34721018
http://dx.doi.org/10.3389/fphar.2021.719415

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8553959/
https://www.ncbi.nlm.nih.gov/pubmed/34721018
http://dx.doi.org/10.3389/fphar.2021.719415

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