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Innovation in Informatics to Improve Clinical Care and Drug Accessibility for Rare Diseases in China
Background: In China, there are severe unmet medical needs of people living with rare diseases. Relatedly, there is a dearth of data to inform rare diseases policy. This is historically partially due to the lack of informatics infrastructure, including standards and terminology, data sharing mechani...
| Autores principales: | , , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Frontiers Media S.A.
2021
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8553959/ https://www.ncbi.nlm.nih.gov/pubmed/34721018 http://dx.doi.org/10.3389/fphar.2021.719415 |