Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants

Legal, financial and organizational challenges and the absence of coherent international guidelines and legal frameworks still discourage many genetic studies to share individual research results with their participants. Studies and institutions deciding to return genetic results will need to design...

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Detalles Bibliográficos
Autores principales: Staunton, Ciara, Kösters, Maria, Pramstaller, Peter P., Mascalzoni, Deborah
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2021
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8554916/
https://www.ncbi.nlm.nih.gov/pubmed/34241790
http://dx.doi.org/10.1007/s12687-021-00536-1

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8554916/
https://www.ncbi.nlm.nih.gov/pubmed/34241790
http://dx.doi.org/10.1007/s12687-021-00536-1

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