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Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants
Legal, financial and organizational challenges and the absence of coherent international guidelines and legal frameworks still discourage many genetic studies to share individual research results with their participants. Studies and institutions deciding to return genetic results will need to design...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Springer Berlin Heidelberg
2021
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8554916/ https://www.ncbi.nlm.nih.gov/pubmed/34241790 http://dx.doi.org/10.1007/s12687-021-00536-1 |