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Building a culture of engagement at a research centre for childhood disability

BACKGROUND: Engaging patients and family members as partners in research studies has become a widespread practice in healthcare. However, relatively little has been documented about what happens after the research study ends. For example, is patient and family engagement embedded in the wider infras...

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Detalles Bibliográficos
Autores principales: Pozniak, Kinga, Buchanan, Francine, Cross, Andrea, Crowson, Jennifer, Galuppi, Barb, Grahovac, Danijela, Gorter, Jan Willem, Hlyva, Oksana, Ketelaar, Marjolijn, Kraus de Camargo, Olaf, Krpan Mesic, Manda, Martens, Rachel, McCauley, Dayle, Nguyen, Linda, Palisano, Robert J., Phoenix, Michelle, Putterman, Connie, Rosenbaum, Peter, Sprung, Jennifer, Strohm, Sonya, Teplicky, Rachel, Thomson, Donna, Wright, Marilyn
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8572501/
https://www.ncbi.nlm.nih.gov/pubmed/34742354
http://dx.doi.org/10.1186/s40900-021-00319-5