Health‐related quality of life in Norwegian adults with Fabry disease: Disease severity, pain, fatigue and psychological distress

Health‐related quality of life (HRQOL) is reduced in Fabry disease (FD) and associated with clinical disease manifestations, but few have used Fabry‐specific severity scores to study how disease burden interferes with quality of life. We investigated how the Fabry DS3, consisting of four somatic dom...

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Detalles Bibliográficos
Autores principales: Pihlstrøm, Hege Kampen, Weedon‐Fekjær, Mina Susanne, Bjerkely, Birgitte Leisner, von der Lippe, Charlotte, Ørstavik, Kristin, Mathisen, Per, Heimdal, Ketil, Jenssen, Trond Geir, Dahle, Dag Olav, Solberg, Olga Karin, Sigurdardottir, Solrun
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons, Inc. 2021
Materias:
Research Reports
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8574186/
https://www.ncbi.nlm.nih.gov/pubmed/34765399
http://dx.doi.org/10.1002/jmd2.12240

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8574186/
https://www.ncbi.nlm.nih.gov/pubmed/34765399
http://dx.doi.org/10.1002/jmd2.12240

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