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Health‐related quality of life in Norwegian adults with Fabry disease: Disease severity, pain, fatigue and psychological distress
Health‐related quality of life (HRQOL) is reduced in Fabry disease (FD) and associated with clinical disease manifestations, but few have used Fabry‐specific severity scores to study how disease burden interferes with quality of life. We investigated how the Fabry DS3, consisting of four somatic dom...
Autores principales: | Pihlstrøm, Hege Kampen, Weedon‐Fekjær, Mina Susanne, Bjerkely, Birgitte Leisner, von der Lippe, Charlotte, Ørstavik, Kristin, Mathisen, Per, Heimdal, Ketil, Jenssen, Trond Geir, Dahle, Dag Olav, Solberg, Olga Karin, Sigurdardottir, Solrun |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley & Sons, Inc.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8574186/ https://www.ncbi.nlm.nih.gov/pubmed/34765399 http://dx.doi.org/10.1002/jmd2.12240 |
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