Systematic review on outcomes used in clinical research on autosomal recessive polycystic kidney disease—are patient-centered outcomes our blind spot?

BACKGROUND: Autosomal recessive polycystic kidney disease (ARPKD) is a rare severe hepatorenal disease. Survivors of pulmonary hypoplasia and patients with milder presentations often achieve long-term survival but frequently require kidney and/or liver transplantation. OBJECTIVE: To examine the use...

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Detalles Bibliográficos
Autores principales: Gimpel, Charlotte, Liebau, Max Christoph, Schaefer, Franz
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2021
Materias:
Systematic Review/Meta-analysis
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8599334/
https://www.ncbi.nlm.nih.gov/pubmed/34386850
http://dx.doi.org/10.1007/s00467-021-05192-8

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8599334/
https://www.ncbi.nlm.nih.gov/pubmed/34386850
http://dx.doi.org/10.1007/s00467-021-05192-8

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