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Ethical Aspects of Personal Science for Persons with Parkinson’s Disease: What Happens When Self-Tracking Goes from Selfcare to Publication?

Using Parkinson’s disease as an exemplary chronic condition, this Commentary discusses ethical aspects of using self-tracking for personal science, as compared to using self-tracking in the context of conducting clinical research on groups of study participants. Conventional group-based clinical res...

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Detalles Bibliográficos
Autores principales: Riggare, Sara, Hägglund, Maria, Bredenoord, Annelien L., de Groot, Martijn, Bloem, Bastiaan R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: IOS Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8609698/
https://www.ncbi.nlm.nih.gov/pubmed/34120915
http://dx.doi.org/10.3233/JPD-212647