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Ethical Aspects of Personal Science for Persons with Parkinson’s Disease: What Happens When Self-Tracking Goes from Selfcare to Publication?
Using Parkinson’s disease as an exemplary chronic condition, this Commentary discusses ethical aspects of using self-tracking for personal science, as compared to using self-tracking in the context of conducting clinical research on groups of study participants. Conventional group-based clinical res...
Autores principales: | Riggare, Sara, Hägglund, Maria, Bredenoord, Annelien L., de Groot, Martijn, Bloem, Bastiaan R. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
IOS Press
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8609698/ https://www.ncbi.nlm.nih.gov/pubmed/34120915 http://dx.doi.org/10.3233/JPD-212647 |
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