A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?

BACKGROUND: With advances in sequencing technologies, increasing numbers of people are being informed about a genetic disease identified in their family. In current practice, probands (the first person in a family in whom a genetic predisposition is identified) are asked to inform at-risk relatives...

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Detalles Bibliográficos
Autores principales: van den Heuvel, Lieke M., Maeckelberghe, Els L. M., Ploem, M. Corrette, Christiaans, Imke
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Debate
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8609755/
https://www.ncbi.nlm.nih.gov/pubmed/34814911
http://dx.doi.org/10.1186/s12910-021-00721-4

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8609755/
https://www.ncbi.nlm.nih.gov/pubmed/34814911
http://dx.doi.org/10.1186/s12910-021-00721-4

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