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A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?
BACKGROUND: With advances in sequencing technologies, increasing numbers of people are being informed about a genetic disease identified in their family. In current practice, probands (the first person in a family in whom a genetic predisposition is identified) are asked to inform at-risk relatives...
Autores principales: | van den Heuvel, Lieke M., Maeckelberghe, Els L. M., Ploem, M. Corrette, Christiaans, Imke |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8609755/ https://www.ncbi.nlm.nih.gov/pubmed/34814911 http://dx.doi.org/10.1186/s12910-021-00721-4 |
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