Impacts and Burden of Niemann pick Type-C: a patient and caregiver perspective

BACKGROUND: Niemann-Pick disease type C (NPC) is a debilitating condition that impacts patients’ and caregivers’ quality of life (QOL) and reduces the patient’s life expectancy. Since there is little qualitative research from the perspective of patients and family caregivers, this study explored the...

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Detalles Bibliográficos
Autores principales: Mengel, Eugen, Patterson, Marc C., Chladek, Michael, Guldberg, Christina, í Dali, Christine, Symonds, Tara, Lloyd-Price, Lucy, Mathieson, Toni, Crowe, Joslyn, Burbridge, Claire
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8611877/
https://www.ncbi.nlm.nih.gov/pubmed/34819124
http://dx.doi.org/10.1186/s13023-021-02105-8

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8611877/
https://www.ncbi.nlm.nih.gov/pubmed/34819124
http://dx.doi.org/10.1186/s13023-021-02105-8

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