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The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial

BACKGROUND: Systemic sclerosis (scleroderma; SSc) is a rare autoimmune connective tissue disease. We completed an initial feasibility trial of an online self-administered version of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program using the cohort multiple ra...

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Detalles Bibliográficos
Autores principales: Nordlund, Julia, Henry, Richard S., Kwakkenbos, Linda, Carrier, Marie-Eve, Levis, Brooke, Nielson, Warren R., Bartlett, Susan J., Dyas, Laura, Tao, Lydia, Fedoruk, Claire, Nielsen, Karen, Hudson, Marie, Pope, Janet, Frech, Tracy, Gholizadeh, Shadi, Johnson, Sindhu R., Piotrowski, Pamela, Jewett, Lisa R., Gordon, Jessica, Chung, Lorinda, Bilsker, Dan, Levis, Alexander W., Turner, Kimberly A., Cumin, Julie, Welling, Joep, Fortuné, Catherine, Leite, Catarina, Gottesman, Karen, Sauve, Maureen, Rodríguez-Reyna, Tatiana Sofía, Larche, Maggie, van Breda, Ward, Suarez-Almazor, Maria E., Wurz, Amanda, Culos-Reed, Nicole, Malcarne, Vanessa L., Mayes, Maureen D., Boutron, Isabelle, Mouthon, Luc, Benedetti, Andrea, Thombs, Brett D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8626736/
https://www.ncbi.nlm.nih.gov/pubmed/34838105
http://dx.doi.org/10.1186/s13063-021-05827-z