Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

BACKGROUND: Rare diseases occur in early childhood and have a major impact on the quality of life of the affected children and their families. Their need for psychosocial support is considerable, but psychosocial care in Germany is still far from being part of routine care. We interviewed experts to...

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Detalles Bibliográficos
Autores principales: Witt, Stefanie, Kristensen, Kaja, Wiegand-Grefe, Silke, Boettcher, Johannes, Bloemeke, Janika, Wingartz, Christina, Bullinger, Monika, Quitmann, Julia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8626925/
https://www.ncbi.nlm.nih.gov/pubmed/34838091
http://dx.doi.org/10.1186/s13023-021-02127-2

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8626925/
https://www.ncbi.nlm.nih.gov/pubmed/34838091
http://dx.doi.org/10.1186/s13023-021-02127-2

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