Qualitative Parental Perceptions of a Paediatric Multidisciplinary Team Clinic for Prader-Willi Syndrome

OBJECTIVE: This preliminary review was conducted to inform the design of a new service to support families with children with Prader-Willi syndrome (PWS). Families were invited to attend a pilot clinic at a hospital outpatient department, comprising appointments with a multi-disciplinary team (MDT)....

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Detalles Bibliográficos
Autores principales: Cox, Jennifer S., Semple, Claire, Augustus, Rhian, Wenn, Melanie, Easter, Shelley, Broadbent, Rebecca, Giri, Dinesh, Hinton, Elanor C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Galenos Publishing 2021
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8638624/
https://www.ncbi.nlm.nih.gov/pubmed/34538048
http://dx.doi.org/10.4274/jcrpe.galenos.2021.2021.0010

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8638624/
https://www.ncbi.nlm.nih.gov/pubmed/34538048
http://dx.doi.org/10.4274/jcrpe.galenos.2021.2021.0010

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