“I Want That Life a Lot…How on Earth Do I Get That?” Examining Challenges for Men With Barth Syndrome in Their Transitions to Adulthood

vFor youth with life-limiting chronic illnesses, transitioning to adulthood in line with age-norms may be difficult due to symptom severity and shortened survival. This study explores whether individuals with Barth syndrome (BTHS), a condition uniquely characterized by extreme prognostic uncertainty...

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Detalles Bibliográficos
Autores principales: Mazar, Iyar, Moorman, Sara M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2021
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8640324/
https://www.ncbi.nlm.nih.gov/pubmed/34869844
http://dx.doi.org/10.1177/23743735211060783

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8640324/
https://www.ncbi.nlm.nih.gov/pubmed/34869844
http://dx.doi.org/10.1177/23743735211060783

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