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The Burden of Primary Caregivers of Spinal Muscular Atrophy Patients and Their Needs
AIM: This study aims to reveal the problems faced by families of children with spinal muscular atrophy (SMA), by evaluating their care burden, needs, and expectations. MATERIALS AND METHODS: The participants were the primary caregivers of 34 children between the ages of 0 and 18 years diagnosed with...
Autores principales: | , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Turkish Pediatrics Association
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8655964/ https://www.ncbi.nlm.nih.gov/pubmed/35005732 http://dx.doi.org/10.5152/TurkArchPediatr.2021.20117 |