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The Burden of Primary Caregivers of Spinal Muscular Atrophy Patients and Their Needs

AIM: This study aims to reveal the problems faced by families of children with spinal muscular atrophy (SMA), by evaluating their care burden, needs, and expectations. MATERIALS AND METHODS: The participants were the primary caregivers of 34 children between the ages of 0 and 18 years diagnosed with...

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Detalles Bibliográficos
Autores principales:	Evkaya Acar, Ayça, Karadağ Saygı, Evrim, İmamoğlu, Sena, Öztürk, Gülten, Ünver, Olcay, Ergenekon, Pınar, Gökdemir, Yasemin, Özel, Gülnur, Türkdoğan, Dilşad
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Turkish Pediatrics Association 2021
Materias:	Original Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8655964/ https://www.ncbi.nlm.nih.gov/pubmed/35005732 http://dx.doi.org/10.5152/TurkArchPediatr.2021.20117

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