Towards a Comprehensive Strategy for the Management of Rare Diseases in Slovenia: Outlining an IT-Enabled Ecosystemic Approach

Rare diseases (RDs), with distinctive and complex features, pose a serious public health concern and represent a considerable challenge for the Slovenian healthcare system. One of the potential approaches to tackling this problem and treating patients with RDs in a quality and effective manner is to...

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Detalles Bibliográficos
Autores principales: Stanimirovic, Dalibor, Murko, Eva, Battelino, Tadej, Groselj, Urh, Zerjav Tansek, Mojca
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8656847/
https://www.ncbi.nlm.nih.gov/pubmed/34886121
http://dx.doi.org/10.3390/ijerph182312395

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8656847/
https://www.ncbi.nlm.nih.gov/pubmed/34886121
http://dx.doi.org/10.3390/ijerph182312395

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