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Acceptability of a Virtual Mind–Body Intervention for Parents of Children With Autism or Learning Disabilities

OBJECTIVE: Parents of children with learning/attentional disabilities (LAD) and autism spectrum disorder (ASD) are at elevated risk for chronic stress. Types of stress and treatment needs differ between these parent groups. We adapted our evidence-based mind–body intervention (SMART-3RP) for parents...

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Autores principales: Luberto, Christina M, Perez, Giselle K, Finkelstein-Fox, Lucy, Millstein, Rachel A, Fell, Lucy, Chad-Friedman, Emma, Park, Elyse R, Kuhlthau, Karen A
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8669114/
https://www.ncbi.nlm.nih.gov/pubmed/34917419
http://dx.doi.org/10.1177/21649561211047804
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author Luberto, Christina M
Perez, Giselle K
Finkelstein-Fox, Lucy
Millstein, Rachel A
Fell, Lucy
Chad-Friedman, Emma
Park, Elyse R
Kuhlthau, Karen A
author_facet Luberto, Christina M
Perez, Giselle K
Finkelstein-Fox, Lucy
Millstein, Rachel A
Fell, Lucy
Chad-Friedman, Emma
Park, Elyse R
Kuhlthau, Karen A
author_sort Luberto, Christina M
collection PubMed
description OBJECTIVE: Parents of children with learning/attentional disabilities (LAD) and autism spectrum disorder (ASD) are at elevated risk for chronic stress. Types of stress and treatment needs differ between these parent groups. We adapted our evidence-based mind–body intervention (SMART-3RP) for parents of children with LAD and ASD, delivered via videoconferencing. Preliminary results from our two wait-list randomized pilot trials suggest the programs were feasible and efficacious. To gain an in-depth understanding of acceptability, the purpose of this secondary analysis from the RCTs is to (1) explore feedback regarding the virtual SMART-3RP and (2) compare feedback across LAD and ASD parents. METHODS: Participants were randomized to immediate or delayed SMART-3RP (separate groups for LAD and ASD) and completed a feedback questionnaire post-intervention (N = 33 LAD, N = 37 ASD; 93% female, 93% white, Mage = 45.52, SD = 6.50). RESULTS: Participants reported the intervention had the right number of sessions (69%), session duration (83%), and amount of structure (83%). They felt comfortable during sessions (89%) and found mind–body skills helpful (89%). There were no significant differences between parent groups other than a trend for more ASD parents reporting sessions were too long (22% ASD vs. 6% LAD, X(2) = 5.67, p =0.06). Qualitative themes were similar across parents and included that video delivery had some technical challenges but enabled participation; group support and mind–body skills were helpful; and further SMART-3RP sessions or therapy is needed. CONCLUSION: LAD and ASD parents found a synchronous video-based mind–body resiliency program acceptable. Technology limitations notwithstanding, online delivery was very satisfactory and overcame obstacles to participation.
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spelling pubmed-86691142021-12-15 Acceptability of a Virtual Mind–Body Intervention for Parents of Children With Autism or Learning Disabilities Luberto, Christina M Perez, Giselle K Finkelstein-Fox, Lucy Millstein, Rachel A Fell, Lucy Chad-Friedman, Emma Park, Elyse R Kuhlthau, Karen A Glob Adv Health Med Original Article OBJECTIVE: Parents of children with learning/attentional disabilities (LAD) and autism spectrum disorder (ASD) are at elevated risk for chronic stress. Types of stress and treatment needs differ between these parent groups. We adapted our evidence-based mind–body intervention (SMART-3RP) for parents of children with LAD and ASD, delivered via videoconferencing. Preliminary results from our two wait-list randomized pilot trials suggest the programs were feasible and efficacious. To gain an in-depth understanding of acceptability, the purpose of this secondary analysis from the RCTs is to (1) explore feedback regarding the virtual SMART-3RP and (2) compare feedback across LAD and ASD parents. METHODS: Participants were randomized to immediate or delayed SMART-3RP (separate groups for LAD and ASD) and completed a feedback questionnaire post-intervention (N = 33 LAD, N = 37 ASD; 93% female, 93% white, Mage = 45.52, SD = 6.50). RESULTS: Participants reported the intervention had the right number of sessions (69%), session duration (83%), and amount of structure (83%). They felt comfortable during sessions (89%) and found mind–body skills helpful (89%). There were no significant differences between parent groups other than a trend for more ASD parents reporting sessions were too long (22% ASD vs. 6% LAD, X(2) = 5.67, p =0.06). Qualitative themes were similar across parents and included that video delivery had some technical challenges but enabled participation; group support and mind–body skills were helpful; and further SMART-3RP sessions or therapy is needed. CONCLUSION: LAD and ASD parents found a synchronous video-based mind–body resiliency program acceptable. Technology limitations notwithstanding, online delivery was very satisfactory and overcame obstacles to participation. SAGE Publications 2021-12-09 /pmc/articles/PMC8669114/ /pubmed/34917419 http://dx.doi.org/10.1177/21649561211047804 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Original Article
Luberto, Christina M
Perez, Giselle K
Finkelstein-Fox, Lucy
Millstein, Rachel A
Fell, Lucy
Chad-Friedman, Emma
Park, Elyse R
Kuhlthau, Karen A
Acceptability of a Virtual Mind–Body Intervention for Parents of Children With Autism or Learning Disabilities
title Acceptability of a Virtual Mind–Body Intervention for Parents of Children With Autism or Learning Disabilities
title_full Acceptability of a Virtual Mind–Body Intervention for Parents of Children With Autism or Learning Disabilities
title_fullStr Acceptability of a Virtual Mind–Body Intervention for Parents of Children With Autism or Learning Disabilities
title_full_unstemmed Acceptability of a Virtual Mind–Body Intervention for Parents of Children With Autism or Learning Disabilities
title_short Acceptability of a Virtual Mind–Body Intervention for Parents of Children With Autism or Learning Disabilities
title_sort acceptability of a virtual mind–body intervention for parents of children with autism or learning disabilities
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8669114/
https://www.ncbi.nlm.nih.gov/pubmed/34917419
http://dx.doi.org/10.1177/21649561211047804
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