Identifying Epidermolysis Bullosa Patient Needs and Perceived Treatment Benefits: An Explorative Study Using the Patient Benefit Index

Epidermolysis bullosa (EB) is a genetic blistering skin condition for which no cure exists. Symptom alleviation and quality of life are therefore central to EB care. This study aimed to gain insight into EB patient needs and benefits from current clinical care. Two questionnaires were administered c...

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Detalles Bibliográficos
Autores principales: Schräder, Nicholas H. B., Korte, Eva W. H., Duipmans, José C., Stewart, Roy E., Bolling, Maria C., Wolff, André P.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8709493/
https://www.ncbi.nlm.nih.gov/pubmed/34945131
http://dx.doi.org/10.3390/jcm10245836

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8709493/
https://www.ncbi.nlm.nih.gov/pubmed/34945131
http://dx.doi.org/10.3390/jcm10245836

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