Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence

INTRODUCTION: International sharing of health data opens the door to the study of the so-called ‘Big Data’, which holds great promise for improving patient-centred care. Failure of recent data sharing initiatives indicates an urgent need to invest in societal trust in researchers and institutions. K...

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Detalles Bibliográficos
Autores principales: Kalkman, Shona, van Delden, Johannes, Banerjee, Amitava, Tyl, Benoît, Mostert, Menno, van Thiel, Ghislaine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2022
Materias:
Clinical Ethics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8717474/
https://www.ncbi.nlm.nih.gov/pubmed/31719155
http://dx.doi.org/10.1136/medethics-2019-105651

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8717474/
https://www.ncbi.nlm.nih.gov/pubmed/31719155
http://dx.doi.org/10.1136/medethics-2019-105651

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