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Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence
INTRODUCTION: International sharing of health data opens the door to the study of the so-called ‘Big Data’, which holds great promise for improving patient-centred care. Failure of recent data sharing initiatives indicates an urgent need to invest in societal trust in researchers and institutions. K...
Autores principales: | Kalkman, Shona, van Delden, Johannes, Banerjee, Amitava, Tyl, Benoît, Mostert, Menno, van Thiel, Ghislaine |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8717474/ https://www.ncbi.nlm.nih.gov/pubmed/31719155 http://dx.doi.org/10.1136/medethics-2019-105651 |
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