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The PID Life Index: an interactive tool to measure the status of the PID healthcare environment in any given country
BACKGROUND: The “Primary Immunodeficiencies (PIDs) principles of care” were published in 2014 as the gold standard for care of patients with PIDs, setting a common goal for stakeholders to ensure that patients with PID have access to appropriate care and good quality of life. Since then, IPOPI (the...
Autores principales: | , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8742924/ https://www.ncbi.nlm.nih.gov/pubmed/34998414 http://dx.doi.org/10.1186/s13023-021-02161-0 |