The PID Life Index: an interactive tool to measure the status of the PID healthcare environment in any given country

BACKGROUND: The “Primary Immunodeficiencies (PIDs) principles of care” were published in 2014 as the gold standard for care of patients with PIDs, setting a common goal for stakeholders to ensure that patients with PID have access to appropriate care and good quality of life. Since then, IPOPI (the...

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Detalles Bibliográficos
Autores principales: Solís, Leire, Nordin, Julia, Prevot, Johan, Mahlaoui, Nizar, Sánchez-Ramón, Silvia, Ali, Adli, Cassignol, Elodie, Seymour, John W., Pergent, Martine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8742924/
https://www.ncbi.nlm.nih.gov/pubmed/34998414
http://dx.doi.org/10.1186/s13023-021-02161-0

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