Facebook Support Groups for Pediatric Rare Diseases: Cross-Sectional Study to Investigate Opportunities, Limitations, and Privacy Concerns

BACKGROUND: Because of the nature of rare diseases with affected individuals being widely geographically dispersed, finding an in-person/offline support group itself can be a challenge. Affected individuals therefore turn to social networking platforms such as Facebook for online support groups. OBJ...

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Detalles Bibliográficos
Autores principales: Titgemeyer, Sarah Catrin, Schaaf, Christian P
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2022
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8778561/
https://www.ncbi.nlm.nih.gov/pubmed/34989690
http://dx.doi.org/10.2196/31411

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8778561/
https://www.ncbi.nlm.nih.gov/pubmed/34989690
http://dx.doi.org/10.2196/31411

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