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What is a ‘serious’ genetic condition? The perceptions of people living with genetic conditions

Despite no consensus on the definition of ‘seriousness’, the concept is regularly used in policy and practice contexts to categorise conditions, determine access to genetic technologies and uses of selective pregnancy termination. Whilst attempts have been made to create taxonomies of genetic condit...

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Detalles Bibliográficos
Autores principales: Boardman, Felicity K., Clark, Corinna C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8821585/
https://www.ncbi.nlm.nih.gov/pubmed/34565797
http://dx.doi.org/10.1038/s41431-021-00962-2