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What is a ‘serious’ genetic condition? The perceptions of people living with genetic conditions
Despite no consensus on the definition of ‘seriousness’, the concept is regularly used in policy and practice contexts to categorise conditions, determine access to genetic technologies and uses of selective pregnancy termination. Whilst attempts have been made to create taxonomies of genetic condit...
Autores principales: | Boardman, Felicity K., Clark, Corinna C. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8821585/ https://www.ncbi.nlm.nih.gov/pubmed/34565797 http://dx.doi.org/10.1038/s41431-021-00962-2 |
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