Incorporating the patient voice and patient engagement in GOAL‐Hēm: Advancing patient‐centric hemophilia care

BACKGROUND: Goal Attainment Scaling for Hemophilia (GOAL‐Hēm) is a novel, hemophilia‐specific, validated patient engagement tool and patient‐reported outcome instrument. OBJECTIVE: We evaluated the degree to which the language of GOAL‐Hēm was patient‐centric and the content valuable and relevant for...

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Detalles Bibliográficos
Autores principales: Roberts, Jonathan C., Recht, Michael, Gonzales, Sarah E., Stanley, Justin, Denne, Michael, Caicedo, Jorge, Rockwood, Kenneth
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8822263/
https://www.ncbi.nlm.nih.gov/pubmed/35155975
http://dx.doi.org/10.1002/rth2.12655

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8822263/
https://www.ncbi.nlm.nih.gov/pubmed/35155975
http://dx.doi.org/10.1002/rth2.12655

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