Awareness and agreement with neurofibromatosis care guidelines among U.S. neurofibromatosis specialists

INTRODUCTION: The neurofibromatoses (NF) are a group of rare, genetic diseases sharing a predisposition to develop multiple benign nervous system tumors. Given the wide range of NF symptoms and medical specialties involved in NF care, we sought to evaluate the level of awareness of, and agreement wi...

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Detalles Bibliográficos
Autores principales: Merker, Vanessa L., Knight, Pamela, Radtke, Heather B., Yohay, Kaleb, Ullrich, Nicole J., Plotkin, Scott R., Jordan, Justin T.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8832755/
https://www.ncbi.nlm.nih.gov/pubmed/35144646
http://dx.doi.org/10.1186/s13023-022-02196-x

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8832755/
https://www.ncbi.nlm.nih.gov/pubmed/35144646
http://dx.doi.org/10.1186/s13023-022-02196-x

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