Collaborative Research and Development of a Novel, Patient-Centered Digital Platform (MyEyeSite) for Rare Inherited Retinal Disease Data: Acceptability and Feasibility Study

BACKGROUND: Inherited retinal diseases (IRDs) are a leading cause of blindness in children and working age adults in the United Kingdom and other countries, with an appreciable socioeconomic impact. However, by definition, IRD data are individually rare, and as a result, this patient group has been...

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Detalles Bibliográficos
Autores principales: Gilbert, Rose M, Sumodhee, Dayyanah, Pontikos, Nikolas, Hollyhead, Catherine, Patrick, Angus, Scarles, Samuel, Van Der Smissen, Sabrina, Young, Rodrigo M, Nettleton, Nick, Webster, Andrew R, Cammack, Jocelyn
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2022
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8845013/
https://www.ncbi.nlm.nih.gov/pubmed/35099396
http://dx.doi.org/10.2196/21341

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8845013/
https://www.ncbi.nlm.nih.gov/pubmed/35099396
http://dx.doi.org/10.2196/21341

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