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Collaborative Research and Development of a Novel, Patient-Centered Digital Platform (MyEyeSite) for Rare Inherited Retinal Disease Data: Acceptability and Feasibility Study
BACKGROUND: Inherited retinal diseases (IRDs) are a leading cause of blindness in children and working age adults in the United Kingdom and other countries, with an appreciable socioeconomic impact. However, by definition, IRD data are individually rare, and as a result, this patient group has been...
Autores principales: | Gilbert, Rose M, Sumodhee, Dayyanah, Pontikos, Nikolas, Hollyhead, Catherine, Patrick, Angus, Scarles, Samuel, Van Der Smissen, Sabrina, Young, Rodrigo M, Nettleton, Nick, Webster, Andrew R, Cammack, Jocelyn |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8845013/ https://www.ncbi.nlm.nih.gov/pubmed/35099396 http://dx.doi.org/10.2196/21341 |
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