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Families’ healthcare experiences for children with inherited metabolic diseases: protocol for a mixed methods cohort study
INTRODUCTION: Children with inherited metabolic diseases (IMDs) often have complex and intensive healthcare needs and their families face challenges in receiving high-quality, family centred health services. Improvement in care requires complex interventions involving multiple components and stakeho...
Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2022
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8867352/ https://www.ncbi.nlm.nih.gov/pubmed/35193919 http://dx.doi.org/10.1136/bmjopen-2021-055664 |