Technologies to Support Frailty, Disability, and Rare Diseases: Towards a Monitoring Experience during the COVID-19 Pandemic Emergency

This report illustrates the design and results of an activity of surveillance proposed by the National Centre for Innovative Technologies in Public Health and the National Centre for Rare Diseases of the Istituto Superiore di Sanità with the aim of monitoring the state-of-use of technologies by peop...

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Autores principales: Giansanti, Daniele, Pirrera, Antonia, Meli, Paola, Grigioni, Mauro, De Santis, Marta, Taruscio, Domenica
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8871764/
https://www.ncbi.nlm.nih.gov/pubmed/35206849
http://dx.doi.org/10.3390/healthcare10020235
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author Giansanti, Daniele
Pirrera, Antonia
Meli, Paola
Grigioni, Mauro
De Santis, Marta
Taruscio, Domenica
author_facet Giansanti, Daniele
Pirrera, Antonia
Meli, Paola
Grigioni, Mauro
De Santis, Marta
Taruscio, Domenica
author_sort Giansanti, Daniele
collection PubMed
description This report illustrates the design and results of an activity of surveillance proposed by the National Centre for Innovative Technologies in Public Health and the National Centre for Rare Diseases of the Istituto Superiore di Sanità with the aim of monitoring the state-of-use of technologies by people with frailty, disabilities, and rare diseases. The results of the surveillance activity reported in this report are as follows: (a) An international Webinar; (b) A Full report published by the Istituto Superiore di Sanità (ISS); (c) an electronic survey tool, for periodic monitoring; (d) an initial summary of the survey (15 September–30 November 2020), giving an overall picture relating to the state-of-use of technologies by the interviewed; (e) an understanding of the needs that emerged, causing reflection on the current state-of-the-art and offering important stimuli for all the stakeholders involved.
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spelling pubmed-88717642022-02-25 Technologies to Support Frailty, Disability, and Rare Diseases: Towards a Monitoring Experience during the COVID-19 Pandemic Emergency Giansanti, Daniele Pirrera, Antonia Meli, Paola Grigioni, Mauro De Santis, Marta Taruscio, Domenica Healthcare (Basel) Project Report This report illustrates the design and results of an activity of surveillance proposed by the National Centre for Innovative Technologies in Public Health and the National Centre for Rare Diseases of the Istituto Superiore di Sanità with the aim of monitoring the state-of-use of technologies by people with frailty, disabilities, and rare diseases. The results of the surveillance activity reported in this report are as follows: (a) An international Webinar; (b) A Full report published by the Istituto Superiore di Sanità (ISS); (c) an electronic survey tool, for periodic monitoring; (d) an initial summary of the survey (15 September–30 November 2020), giving an overall picture relating to the state-of-use of technologies by the interviewed; (e) an understanding of the needs that emerged, causing reflection on the current state-of-the-art and offering important stimuli for all the stakeholders involved. MDPI 2022-01-26 /pmc/articles/PMC8871764/ /pubmed/35206849 http://dx.doi.org/10.3390/healthcare10020235 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Project Report
Giansanti, Daniele
Pirrera, Antonia
Meli, Paola
Grigioni, Mauro
De Santis, Marta
Taruscio, Domenica
Technologies to Support Frailty, Disability, and Rare Diseases: Towards a Monitoring Experience during the COVID-19 Pandemic Emergency
title Technologies to Support Frailty, Disability, and Rare Diseases: Towards a Monitoring Experience during the COVID-19 Pandemic Emergency
title_full Technologies to Support Frailty, Disability, and Rare Diseases: Towards a Monitoring Experience during the COVID-19 Pandemic Emergency
title_fullStr Technologies to Support Frailty, Disability, and Rare Diseases: Towards a Monitoring Experience during the COVID-19 Pandemic Emergency
title_full_unstemmed Technologies to Support Frailty, Disability, and Rare Diseases: Towards a Monitoring Experience during the COVID-19 Pandemic Emergency
title_short Technologies to Support Frailty, Disability, and Rare Diseases: Towards a Monitoring Experience during the COVID-19 Pandemic Emergency
title_sort technologies to support frailty, disability, and rare diseases: towards a monitoring experience during the covid-19 pandemic emergency
topic Project Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8871764/
https://www.ncbi.nlm.nih.gov/pubmed/35206849
http://dx.doi.org/10.3390/healthcare10020235
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