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A Comparison of Caregiver and Patient Preferences for Treating Duchenne Muscular Dystrophy
BACKGROUND AND OBJECTIVES: Caregivers routinely inform medical and regulatory decision making in rare pediatric diseases. While differences in treatment preferences across caregivers and patients have been observed for Duchenne muscular dystrophy, this evidence was limited by small samples of patien...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8894129/ https://www.ncbi.nlm.nih.gov/pubmed/35243571 http://dx.doi.org/10.1007/s40271-022-00574-y |