A Comparison of Caregiver and Patient Preferences for Treating Duchenne Muscular Dystrophy

BACKGROUND AND OBJECTIVES: Caregivers routinely inform medical and regulatory decision making in rare pediatric diseases. While differences in treatment preferences across caregivers and patients have been observed for Duchenne muscular dystrophy, this evidence was limited by small samples of patien...

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Detalles Bibliográficos
Autores principales: Crossnohere, Norah L., Fischer, Ryan, Vroom, Elizabeth, Furlong, Patricia, Bridges, John F. P.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Original Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8894129/
https://www.ncbi.nlm.nih.gov/pubmed/35243571
http://dx.doi.org/10.1007/s40271-022-00574-y

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