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Quality of life and informal care burden associated with duchenne muscular dystrophy in Portugal: the COIDUCH study
BACKGROUND: To describe the reduced health-related quality of life (HRQoL) of duchenne muscular dystrophy (DMD) patients and their caregiver burden and to present its relationship with disease progression. METHODS: This cross-sectional study assessed patient HRQoL with the 3-level version of the Eur...
Autores principales: | , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8896234/ https://www.ncbi.nlm.nih.gov/pubmed/35241084 http://dx.doi.org/10.1186/s12955-022-01941-x |