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Quality of life and informal care burden associated with duchenne muscular dystrophy in Portugal: the COIDUCH study

BACKGROUND: To describe the reduced health-related quality of life (HRQoL) of duchenne muscular dystrophy (DMD) patients and their caregiver burden and to present its relationship with disease progression. METHODS: This cross-sectional study assessed patient HRQoL with the 3-level version of the Eur...

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Detalles Bibliográficos
Autores principales: Andreozzi, Valeska, Labisa, Pedro, Mota, Melina, Monteiro, Susana, Alves, Rita, Almeida, João, Vandewalle, Björn, Felix, Jorge, Buesch, Katharina, Canhão, Hugo, Beitia Ortiz de Zarate, Igor
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8896234/
https://www.ncbi.nlm.nih.gov/pubmed/35241084
http://dx.doi.org/10.1186/s12955-022-01941-x