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Parental and child adjustment to amyotrophic lateral sclerosis: transformations, struggles and needs

BACKGROUND: Amyotrophic lateral sclerosis (ALS), progressive muscular atrophy (PMA) and primary lateral sclerosis (PLS), together referred to as ALS, are life-limiting diagnoses affecting not only patients but also the families surrounding them, especially when dependent children are involved. Despi...

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Detalles Bibliográficos
Autores principales: Sommers-Spijkerman, Marion, Rave, Neele, Kruitwagen-van Reenen, Esther, Visser-Meily, Johanna M. A., Kavanaugh, Melinda S., Beelen, Anita
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8929294/
https://www.ncbi.nlm.nih.gov/pubmed/35300726
http://dx.doi.org/10.1186/s40359-022-00780-1