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Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study

BACKGROUND: A fundamental ethical challenge in conducting genomics research is the question of what and how individual level genetic findings and aggregate genomic results should be conveyed to research participants and communities. This is within the context of minimal guidance, policies, and exper...

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Detalles Bibliográficos
Autores principales: Kisiangani, Isaac, Mohamed, Shukri F., Kyobutungi, Catherine, Tindana, Paulina, Ghansah, Anita, Ramsay, Michele, Asiki, Gershim
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8932129/
https://www.ncbi.nlm.nih.gov/pubmed/35300680
http://dx.doi.org/10.1186/s12910-022-00767-y