Family-Centered Advance Care Planning: What Matters Most for Parents of Children with Rare Diseases

Few studies have described the goals and wishes of parents caring for their children with rare diseases, specifically when children are unable to communicate their preferences directly. The purpose of this study was to describe the parent’s understanding of their child’s illness, goals of care, and...

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Detalles Bibliográficos
Autores principales: Fratantoni, Karen, Livingston, Jessica, Schellinger, Sandra E., Aoun, Samar M., Lyon, Maureen E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8947189/
https://www.ncbi.nlm.nih.gov/pubmed/35327817
http://dx.doi.org/10.3390/children9030445

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8947189/
https://www.ncbi.nlm.nih.gov/pubmed/35327817
http://dx.doi.org/10.3390/children9030445

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