Lived experiences of patients with distal renal tubular acidosis treated with ADV7103 and of their caregivers: a qualitative study

BACKGROUND: Consequences of distal renal tubular acidosis (dRTA) on growth, bone and kidney, sometimes associated with hearing loss, may significantly affect quality of life (QoL). This descriptive qualitative study explores QoL linked to dRTA and gathers the impressions of patients with this rare d...

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Detalles Bibliográficos
Autores principales: Acquadro, Michaël, Marrel, Alexia, Manso-Silván, Maria A., Guittet, Catherine, Joukoff, Sophie, Bertholet-Thomas, Aurélia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8962487/
https://www.ncbi.nlm.nih.gov/pubmed/35346296
http://dx.doi.org/10.1186/s13023-022-02294-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8962487/
https://www.ncbi.nlm.nih.gov/pubmed/35346296
http://dx.doi.org/10.1186/s13023-022-02294-w

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