Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN

INTRODUCTION: Duchenne muscular dystrophy is a rare, progressive, life-limiting genetic neuromuscular condition that significantly impacts the quality of life of informal caregivers. Carer quality of life is measured using heterogeneous self-report scales, yet their suitability for Duchenne remains...

Descripción completa

Detalles Bibliográficos
Autores principales: Carlton, Jill, Powell, Philip A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8977045/
https://www.ncbi.nlm.nih.gov/pubmed/35366897
http://dx.doi.org/10.1186/s12955-022-01964-4

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8977045/
https://www.ncbi.nlm.nih.gov/pubmed/35366897
http://dx.doi.org/10.1186/s12955-022-01964-4

Ejemplares similares