The experiences of people with haemophilia and their families of gene therapy in a clinical trial setting: regaining control, the Exigency study

BACKGROUND: Gene therapy has the potential to change the life experience of people with haemophilia and family members. Few studies have sought to explore the impact of gene therapy on both individuals and families. The aim of this study was to capture real-life experiences of gene therapy in People...

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Detalles Bibliográficos
Autores principales: Fletcher, Simon, Jenner, Kathryn, Pembroke, Luke, Holland, Michael, Khair, Kate
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8981747/
https://www.ncbi.nlm.nih.gov/pubmed/35379267
http://dx.doi.org/10.1186/s13023-022-02256-2

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8981747/
https://www.ncbi.nlm.nih.gov/pubmed/35379267
http://dx.doi.org/10.1186/s13023-022-02256-2

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