“The Stakes Are Higher”- Patient and Caregiver Perspectives on Cystic Fibrosis Research and Personalized Medicine

INTRODUCTION: Making bench to bedside advances in cystic fibrosis (CF) care requires the sustained engagement and trust of people living with CF. However, there is a scarcity of studies exploring their concerns and priorities regarding research and its end products. The aim of this qualitative study...

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Detalles Bibliográficos
Autores principales: Knoppers, Terese, Cosquer, Marie, Hagan, Julie, Nguyen, Minh Thu, Knoppers, Bartha Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Medicine
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8984098/
https://www.ncbi.nlm.nih.gov/pubmed/35402437
http://dx.doi.org/10.3389/fmed.2022.841887

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8984098/
https://www.ncbi.nlm.nih.gov/pubmed/35402437
http://dx.doi.org/10.3389/fmed.2022.841887

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