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“The Stakes Are Higher”- Patient and Caregiver Perspectives on Cystic Fibrosis Research and Personalized Medicine
INTRODUCTION: Making bench to bedside advances in cystic fibrosis (CF) care requires the sustained engagement and trust of people living with CF. However, there is a scarcity of studies exploring their concerns and priorities regarding research and its end products. The aim of this qualitative study...
Autores principales: | Knoppers, Terese, Cosquer, Marie, Hagan, Julie, Nguyen, Minh Thu, Knoppers, Bartha Maria |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8984098/ https://www.ncbi.nlm.nih.gov/pubmed/35402437 http://dx.doi.org/10.3389/fmed.2022.841887 |
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